By Dan Coulter
It’s
family holiday gatherings season.
So, do
you feel anticipation or anxiety?
If you
have a child with an autism spectrum disorder, you might feel a bit of both.
My wife
and I are veterans of years of extended family gatherings with our son who has
Asperger Syndrome. We’ve learned that the proper preparation is a great
insurance policy toward making the gathering a positive experience for
everyone.
First, size
up the situation realistically. What will your family event be
like? How is your son or daughter with an ASD likely to react in that
environment? What can you do to influence the environment and prepare
your child?
Let’s say
you have a son named Bill who has Asperger Syndrome.
If you’re
going to be seeing family who doesn’t often interact with Bill, consider
writing a letter or email to those who will attend. Tell them you want to help
ensure that everyone has a good time, so you want to explain that, because Bill
has Asperger Syndrome, he may act or react a bit differently than they’re used
to.
The
letter should be positive. It should not tell people how they have to act
to accommodate Bill. It should focus on the nice experience everyone can
have if family members make some adjustments to help Bill fit in.
For
example, Bill loves studying weather, has learned a lot about weather, and is
always eager to talk about weather. You can write that it would be great
if you could work with the others who will attend the gathering to plan some
games or activities or decorations that relate to weather. And explain
that if Bill goes on a bit too long about weather, it’s O.K. to say, "I’m
really impressed with all you know about weather, Bill, but I’m not as
interested in it as you are, and I’d like to talk about something else
now."
The key
is to help others understand how Bill is likely to act and react, and give them
suggestions on interacting with Bill that will help keep things positive.
If Bill is likely to exhibit behaviors that could be interpreted as rude or
tactless, explain that he doesn’t mean to offend, it’s just the way his brain
processes information. Be honest, but upbeat. Ask parents to share
appropriate information about being patient with Bill with their children.
Consider
past experience to determine how closely you, or someone else who knows what to
expect, needs to supervise Bill in this environment. You may need to
limit your stay or identify a quiet place where Bill can be by himself with a
book or a game or a DVD if the situation becomes overwhelming for him.
In your
letter, you can also inquire about the other children who will attend and ask
if there’s anything special the group might plan or do for them. After
all, you want the visit to be special for everyone.
Finally,
talk with Bill about what to expect and help him practice the social skills you
want him to use. The more Bill knows about the gathering in advance and
how to deal with it, the more confident and comfortable he’s likely to be.
You might
choose to write a social story describing the upcoming event. My wife
once wrote a "news story" about our niece’s wedding and read it to
our son in the car as we traveled to another state for the ceremony.
Consider your child’s history as you plan your briefing. You may decide
to provide less detail if your child is very literal minded and gets upset when
things don’t turn out exactly the way he or she expects they will.
A lot of
families (ours included) have attended events simply hoping for the best.
But we’ve learned that hope is more realistic if you stack the deck.
Where extended family gatherings are concerned, you may need to mark it, stack
it, and stick a few cards up your sleeve.
But
everybody wins.
ABOUT THE AUTHOR: Dan Coulter is
the producer of the DVD: "MANNERS FOR THE REAL WORLD: Basic Social
Skills," which has just been revised and re-released with English and
Spanish subtitles. You'll find more articles and information on his
website at:
www.coultervideo.com.
Copyright 2008
Dan Coulter All Rights
Reserved. Used by Permission.
Looking for a text to help your child with autism learn about Christianity and faith? Check out The child with autism learns about faith: 15 ready-to-use scripture lessons, from the Garden of Eden to the parting of the Red Sea. Author Kathy Labosh has put together practical tips for congregations to help include children in the faith community. This book has:
The Indiana Resource Center for Autism has released its latest edition of the IRCA Reporter, its electronic newsletter that its delivered via listserv. To sign up and receive the IRCA Reporter, enter your email address on the following page: http://www.iidc.indiana.edu/index.php?pageId=3314 This latest edition of the newsletter focuses on upcoming workshops presented by IRCA and also offers the fall schedule of the Parent Group Meetings.
Carol Kranowitz offers a full 3 hour presentation is the video Sensory issues in learning & behavior. Learn more about research in sensory processing disorders, techniques to use with different sensory issues, and possible co-existing problems (e.g., visual, auditory, eating, sleeping, and emotional difficulties).
